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(a) Draw a drop of blood by pricking a finger to measure blood sugar. (b) Draw blood from the arm for a full set of blood tests. (c) Insert a tube that remains in the arm, so that blood can be drawn regularly. Who reviews? Government regulations require that institutional review boards consist of at least five people, including at least one scientist, one non scientist, and one person from outside the institution. Most boards are larger, but many contain just one outsider. (a) Why should review boards contain people who are not scientists? (b) Do you think that one outside member is enough? How would you choose that member? (For example, would you prefer a medical doctor? A member of the clergy? An activist for patients’ rights?)

Short Answer

Expert verified
Non-scientists bring diverse perspectives. One outside member may not suffice. Consider roles like medical doctors or patient rights activists.

Step by step solution

01

Understand the Role of Non-Scientist Members in Review Boards

Non-scientist members on the review board ensure the inclusion of diverse perspectives, often representing ethical or societal views that pure scientists might overlook. They provide a holistic approach to decision-making by considering the social, ethical, and practical implications of research activities.
02

Evaluate the Adequacy of Having One Outside Member

Having only one outsider on the board might limit the diversity of viewpoints, as their influence might be outweighed by the numerous internal members. While one outside member can bring unique insights, having more outsiders could enhance the diversity and balance in decision-making, providing a broader societal perspective.
03

Considerations for Choosing an Outside Member

Selecting an appropriate outside member depends on the values and goals of the board. For instance, choosing a medical doctor might ensure expertise in health-related issues, a member of the clergy could bring ethical or moral considerations to the forefront, and an activist for patients' rights could advocate for the subjects' well-being. Ideally, a mix of these backgrounds can cater to a wider array of perspectives and needs.

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Key Concepts

These are the key concepts you need to understand to accurately answer the question.

Non-scientist members
Non-scientist members play a crucial role on institutional review boards (IRBs). These individuals, often representing the broader community, provide perspectives that go beyond the scientific and technical aspects of research. Their primary responsibility is to ensure that research is not just scientifically sound but also ethically and socially responsible.

Non-scientist members bring a human element to the table, which might be missed by others who are deeply engrossed in the technicalities. They ask questions about how people will be affected and whether the research respects individual rights and dignity. This helps to bridge the gap between scientific communities and the general public, fostering trust and transparency. Additionally, their participation ensures that issues like informed consent and risk assessment are handled with care and understanding.
Ethical considerations
Ethical considerations are at the heart of any research review process. Institutional review boards are tasked with ensuring that all research upholds the highest ethical standards. This means protecting human subjects, ensuring that research benefits outweigh the risks, and respecting participants' autonomy.

Some key ethical considerations include:
  • Informed Consent: Ensuring participants understand the research and agree to participate voluntarily.
  • Confidentiality: Protecting personal information and maintaining privacy.
  • Minimizing Harm: Ensuring that any potential risks to participants are justified and minimized.

Non-scientist members contribute valuable insights by emphasizing these ethical dimensions. They may raise concerns about potential coercion or power imbalances, ensuring that the dignity and rights of participants are a priority.
Diversity of viewpoints
Having a diversity of viewpoints on institutional review boards is essential for well-rounded decision-making. A board composed exclusively of scientists might miss important cultural, ethical, or social implications of research projects. Including diverse voices ensures that multiple angles are considered.

Diverse viewpoints can result from including individuals with different backgrounds, such as those in the medical, ethical, social, and legal fields. For example, a psychologist might view a research proposal differently than an economist, while a patient advocate might prioritize different aspects than a historian.

Diversity helps in avoiding "groupthink", where the lack of varied perspectives can lead to biased decisions. It ensures that the board can critically assess research proposals with a comprehensive understanding of potential benefits and drawbacks from multiple societal angles.
Societal perspectives
Societal perspectives are an important consideration for any institutional review board. Research does not occur in a vacuum; it affects communities and can have widespread societal implications. Understanding these broader impacts is crucial for responsible research.

Societal perspectives include weighing the benefits of research against potential societal risks, such as social stigmatization or discrimination. For instance, a study on a particular disease could inadvertently lead to stigmatization if not handled sensitively.

Incorporating societal viewpoints can also highlight areas of research that are of significant interest or concern to the public. This ensures research priorities align with societal needs and values, making research more responsive and relevant to real-world challenges. Non-scientist members often serve as a conduit for these societal perspectives, ensuring that public concerns and values are faithfully represented in the board's deliberations.

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